USA Today July 26, 2026 • 16:13

My son has cerebral palsy and epilepsy. No one gave us a road map - USA Today

By Danielle Stephens

My son has cerebral palsy and epilepsy. No one gave us a road map - USA Today

Research shows 68% of families of children with medical complexity report unmet care coordination needs nationally.

I watched the technicians install the tiny car bed in the backseat beside the car seat that would hold his twin sister. They secured the portable oxygen tanks and settled my son into place. We were f… [+6281 chars]

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